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Aging parents’ caregiving and rehabilitating a brain-injured son: an autoethnography of a 10-year journey


Syed Hassan, Syed Tajuddin and Jamaludin, Husna (2014) Aging parents’ caregiving and rehabilitating a brain-injured son: an autoethnography of a 10-year journey. Electronic Physician, 6 (4). pp. 927-931. ISSN 2008-5842


This autoethnography withdraws from information accumulated through a 10-year period of daily-weekly-monthly descriptive observation-recording (triangulated- parents & house-helper) of caregiving and rehabilitating of our brain injured son (survivor/care-receiver). We present it as an interactive voice of verbal conversation, thoughts, insights, and interpretations. It is delivered as a series of articulation intra-pulsated with our interrogation of societal-cultural-religious perspectives, norms and biases, and aligns with the CAP (Creative Analytical Practices) method of Ellis. This autoethnography glows from the richness of information which encapsulates the challenges confronting us the aging parent caregivers, the gradual incremental mind mending achievement of our son, and the interactive verbalizations and thoughts, of the caregivers, care-receiver, and other persons. The overwhelming mental and physical pain and struggle of the survivor and the aging caregivers and their sense of celebratory-satisfaction with rehabilitation progress are highlighted. Interpretation and valuation of positive and negative responses of other persons provide a critical matrix to this autoethnography. We intend to inform other caregivers and relevant healthcare professionals through this autoethnography.

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Additional Metadata

Item Type: Article
Divisions: Faculty of Medicine and Health Science
DOI Number: https://doi.org/10.14661/2014.927-931
Publisher: Electronic Physician
Keywords: Autoethnography; Traumatic brain injury (TBI); Caregiving; Aging; Rehabilitation
Depositing User: Nabilah Mustapa
Date Deposited: 15 Jun 2015 12:07
Last Modified: 22 Jan 2016 03:40
Altmetrics: http://www.altmetric.com/details.php?domain=psasir.upm.edu.my&doi=10.14661/2014.927-931
URI: http://psasir.upm.edu.my/id/eprint/36349
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